Questions to Ask When Considering a Clinical Trial for Medulloblastoma

If you are considering participating in a clinical trial for medulloblastoma, here are some questions you may want to ask:

1. Phase: What phase is this trial?
2. Knowns and Unknowns: What do we know right now about the treatment being tested and what is unknown?
3. Purpose: What is the purpose of the trial?
4. Benefit: What is the chance that this trial will benefit my child?
5. Treatment: What would my child’s treatment be if they do not participate in the trial?
6. Testing: Are there extra tests my child would have to undergo if they participate in the trial?
7. Cost: What will I or my insurance be charged for and what will the trial pay for during the trial?
8. Sickness: If my child gets sick or is hospitalized during the trial, who will pay for that?
9. Randomization: Is the trial randomized?
10. Placebo: Is there a placebo or blinding, or will I know what treatment my child is taking?
11. Funding: Who is paying for the clinical trial research? Is it the company producing the drug?
12. Reimbursement: Does my child receive any type of financial reimbursement for participating in this trial?